tag:blogger.com,1999:blog-46878230747713394482024-02-19T00:57:25.024-08:00Eye On MelanomaSuzyL.http://www.blogger.com/profile/17081660583495917380noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-4687823074771339448.post-16033424423383978892013-09-04T20:29:00.000-07:002013-09-04T20:29:34.935-07:00<div class="separator" style="clear: both; text-align: center;">
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<h2>
<span style="color: #45818e;">Here is a picture of what my eye looked like after the exenteration (eye and lids removed). It was a drastic surgery and the skin graft over the eye cavity is my thigh skin which I have a picture of further down in my blog. </span></h2>
<h2>
<span style="color: #0c343d;">As of September, 2013, I am done with seeing my ocular oncologist unless something is happening with my right eye. I just went to Dr. Minor, my oncologist and everything is fine. </span></h2>
<h2>
<span style="color: #a64d79;">In December of this year, it will be my 7 year NEDiversary!</span></h2>
<h3>
<span style="color: #a64d79;">(No evidence of disease!!!)</span></h3>
SuzyL.http://www.blogger.com/profile/17081660583495917380noreply@blogger.com0tag:blogger.com,1999:blog-4687823074771339448.post-23473761710958740682013-02-18T13:26:00.001-08:002013-02-18T13:26:55.559-08:00The Bono Look<div class="separator" style="clear: both; text-align: center;">
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</h3>
SuzyL.http://www.blogger.com/profile/17081660583495917380noreply@blogger.com2tag:blogger.com,1999:blog-4687823074771339448.post-54434574161032619492013-02-18T13:21:00.000-08:002013-02-18T13:21:31.633-08:00Update 2/2013<h3>
Update after getting my ocular prosthesis-</h3>
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<span style="color: #674ea7;">In January I went to Owings Mills, MD and had my procedure done. I will need to go back in April for some tweaks to it. Adhesive issues and magnet issues. It is a very interesting process, Juan Garcia, Anaplastologist makes it from being there live, no pictures to do it from long distance. Juan does amazing work and I am so grateful that this could be done for me! It's nice to be able to wear regular glasses indoors instead of rocking the Bono look! Although, I must say that my prescription sunglasses rock!</span>SuzyL.http://www.blogger.com/profile/17081660583495917380noreply@blogger.com0tag:blogger.com,1999:blog-4687823074771339448.post-55236955777258774302012-11-01T09:02:00.000-07:002012-11-01T09:02:44.033-07:00<div class="separator" style="clear: both; text-align: center;">
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<h3>
This is an example of the prosthestic work for my eye. I will have this process in January 2013. I will also have a CT scan in January, but so far I have no evidence of disease. It will be 6 years clear in December!</h3>
SuzyL.http://www.blogger.com/profile/17081660583495917380noreply@blogger.com0tag:blogger.com,1999:blog-4687823074771339448.post-33593481495637894492012-11-01T08:58:00.001-07:002012-11-01T08:58:20.907-07:00October 2012<h3>
My Latest Step Towards a Prosthetic Facial Implant</h3>
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<span style="color: #38761d;">In September I went back to Philadelphia to have some titanium rods inserted into my eye cavity. I am healing nicely...</span>SuzyL.http://www.blogger.com/profile/17081660583495917380noreply@blogger.com0tag:blogger.com,1999:blog-4687823074771339448.post-44301231590368671522012-07-11T11:24:00.001-07:002012-07-11T11:25:26.860-07:00<h3>
June 2012</h3>
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<span style="color: #674ea7;"><strong>I had some surgery at Jefferson Hospital in Philadelphia to debulk the skin tissue over my eye cavity. It looks great and should be able to support my prosthesis. I will go back to have titanium implants attached to the bone in the eye socket in September.</strong></span>SuzyL.http://www.blogger.com/profile/17081660583495917380noreply@blogger.com1tag:blogger.com,1999:blog-4687823074771339448.post-62778203786085762622012-05-14T17:34:00.001-07:002012-05-14T17:34:17.035-07:00The Stories Behind The Faces Of Melanoma: Stories Behind The Faces Of Melanoma<a href="http://facesofmelanoma.blogspot.com/2012/05/stories-behind-faces-of-melanoma.html?spref=bl">The Stories Behind The Faces Of Melanoma: Stories Behind The Faces Of Melanoma</a>: Greetings. This is the best way I have found for you to be able to tell your story about your journey with melanoma. It may be your loved on...SuzyL.http://www.blogger.com/profile/17081660583495917380noreply@blogger.com0tag:blogger.com,1999:blog-4687823074771339448.post-61038285087778520342012-05-14T17:25:00.003-07:002012-07-11T11:25:05.676-07:00My Story<span style="color: purple;"></span><br />
<h2>
My story begins in 2003</h2>
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<span style="color: purple;">I have a freckle on the inner corner of my eye, and I notice a tumor growing on the surface of the white part of my eye. My opthalmologist operates on me. I get a phone call two days later, with him telling me that the initial pathology looks like malignant melanoma and that he can no longer see me.</span><br />
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<h3>
Treatments begin</h3>
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Over the course of the next few years I undergo at least ten to twelve surgeries removing the freckled pigmentation that is my melanoma. The correct term is Primary Acquired Melanosis. I also have proton beam radiation and topical chemotherapy eye drops. Never even knew there could be such a thing! The picture above is what my eye looked like.<br />
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<h3>
Things Change in 2006</h3>
<span style="color: purple;">I feel a lump under my jaw in November, have a fine needle biopsy, and lo and behold, the melanoma has gotten loose. My ocular oncologist thought this would never happen. I undergo a radical neck dissection.</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZcp-hCF0ua_NRjnUW_Wdx6JGfVTiiV_vEz26cgwMR6ofdH-bOrIWZU04ucdfugQ7S94xwcEv3llhDyt2izIEAecR8HMyoMtLq5LYgzpRbUv9lKnh-yYapEC6SSRzrFPenQGrK-Pw88k2l/s1600/my+stiches.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZcp-hCF0ua_NRjnUW_Wdx6JGfVTiiV_vEz26cgwMR6ofdH-bOrIWZU04ucdfugQ7S94xwcEv3llhDyt2izIEAecR8HMyoMtLq5LYgzpRbUv9lKnh-yYapEC6SSRzrFPenQGrK-Pw88k2l/s320/my+stiches.JPG" width="320" /></a></div>
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<span style="color: purple;">I find out after the dissection that I also have a tumor on my lung. This shoots me straight to stage IV, completely bypassing stage III.</span><br />
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<h3>
Next Adventure, Biochemotherapy</h3>
I go before the tumor board and the chosen treatment in 2006 and the only one offered to me was Biochemotherapy. If I did not choose this toxic treatment I could die between 6 and 9 months. No way! I chose the Biochemotherapy. I had to have this treatment in the hospital for 5 days each month for 6 months. Another ingredient added to the mix is IL-2. <br />
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Six Months Later</h3>
<span style="color: purple;">After the Biochemotherapy I have 12 months of High Dose IL-2. If any of you have had Biochemotherapy and/ or IL-2, you can agree with me that you will never feel so awful, ever! Oh, and I also injected myself between hospital stays with Leukine and IL-2.</span><br />
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One Year Later</h3>
March of 2008 I complete my treatment. I didn't know that you start counting from the beginning of your treatment in terms of remission. So at this point I am NED (No evidence of disease). I remained free of the Primary Acquired Melanosis until...<br />
<h3>
2011</h3>
<span style="color: purple;">I start developing the pigmentations like pictured above, except now I am getting the pigmentation on my eyelids too. My oncologist refers me to Wills Eye Hospital and he thinks I should have my eye and eyelids removed, so that's what I do. I have an exenteration (lids and eye removed) in October. The doctors use a graft from my thigh in which to cover my open eye cavity. After a grueling 10 hour surgery and another surgery the next day, my eye is gone forever.</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhkrFkCeVmiIe2f_tMhL1EBtV2j1bb9rToZNDBykJRuksS7akLIIPvYlgDQBut5SItpv0BIatLpDQOQFU5hvVv88m0M6QJKDMJ8hImi12F-aiwjxC_YgE93ObSAwz-feKK8Wm6kRjhNxshG/s1600/004.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhkrFkCeVmiIe2f_tMhL1EBtV2j1bb9rToZNDBykJRuksS7akLIIPvYlgDQBut5SItpv0BIatLpDQOQFU5hvVv88m0M6QJKDMJ8hImi12F-aiwjxC_YgE93ObSAwz-feKK8Wm6kRjhNxshG/s320/004.JPG" width="240" /></a></div>
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<h3>
Here is my skin graft for my eye covering</h3>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjAX1G1TuIp3mr7mC5IP5emGXFziLJG-SMeEC4inpGmtAmVmBi_RgYNPpXFF3KwBZkDsGSZQYNIGmickA15MrCihIushEKGeG_3u5BNZbcLa5JBngZenHhkc4sKxQ5CDQ7hM-_zXuwhM52g/s1600/011.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjAX1G1TuIp3mr7mC5IP5emGXFziLJG-SMeEC4inpGmtAmVmBi_RgYNPpXFF3KwBZkDsGSZQYNIGmickA15MrCihIushEKGeG_3u5BNZbcLa5JBngZenHhkc4sKxQ5CDQ7hM-_zXuwhM52g/s320/011.JPG" width="240" /></a></div>
<h3>
This is what my leg on my eye looks like :)</h3>
<h3>
2012</h3>
I am doing well, I am going back to Philadelphia to remove some of this skin so I can support a prosthetic eye and surrounding skin. I am due for surgery on June 22nd. I am NED still and will keep you updated when I have my surgery! Thank you for reading!<br />
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<h3>
Here is my support system</h3>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgNMAF9KeVYuzORKRaQW2of_9kWrtck0TLITEzzGIW2TAOSRk47Vs51QxgGciBnI6p-YCookb51witGV3pBir9kB3lfbEIWpM7_k955_mYdc2x_cW2YD8QBEfHOFgBtjsYDODynFhORLauT/s1600/DSC06493.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgNMAF9KeVYuzORKRaQW2of_9kWrtck0TLITEzzGIW2TAOSRk47Vs51QxgGciBnI6p-YCookb51witGV3pBir9kB3lfbEIWpM7_k955_mYdc2x_cW2YD8QBEfHOFgBtjsYDODynFhORLauT/s320/DSC06493.JPG" width="320" /></a></div>
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<br />SuzyL.http://www.blogger.com/profile/17081660583495917380noreply@blogger.com8tag:blogger.com,1999:blog-4687823074771339448.post-36587278108731624052012-05-14T17:06:00.001-07:002012-05-14T17:26:21.686-07:00The Stories Behind The Faces Of Melanoma: Stories Behind The Faces Of Melanoma<a href="http://facesofmelanoma.blogspot.com/2012/05/stories-behind-faces-of-melanoma.html?spref=bl">The Stories Behind The Faces Of Melanoma: Stories Behind The Faces Of Melanoma</a>: Greetings. This is the best way I have found for you to be able to tell your story about your journey with melanoma. It may be your loved on...SuzyL.http://www.blogger.com/profile/17081660583495917380noreply@blogger.com0